| I can't wait to read your book! I have been praying for Amanda for four years now. My 8 year old daughter has FSGS too. Reading Amanda's story, seeing her strength and that of her mother's Tracy has given me strength. Lynn, you are a wonderful friend to do this for them. May God richly bless you all. |
| Beth A. Turner |
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| Hi Amanda ,Tracy & Jessie. Each day we continue to pray to God for you, knowing that He can do all things, since He created all things and everyone. We miss seeing you, Tracy and Jessie at First Baptist Church. We do see Jacob, but he isn't as pretty as you. We have two Scottish Terriers who also want to see you when you visit us again. However, they might lick the nose off your face. Loving you always, in Jesus our Savior and Lord - Ken & Annita Ready. |
| Ken & Annita Ready |
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| My son Matthew Waite has just been diagnosed with fsgs and tubular hypertrophy. He deals with frequent severe migraines (throwing up) and have occurred at times when I as a mother also noticed his fluxuating blood pressure. We have an appointment at Loma Linda in April 2006. Is it possible that these migraines are related to his kidney disease? |
| Teresa Waite |
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| I was looking for info on cell cept and rapamune and I stumbled upon your story. You are a very brave little girl! When I was 12 yrs old I had a liver transplant. I waited for 16 months to be transplanted. I was in and out of the hospital all the time. It was the longest battle I fought. I am 22 now and I have a daughter of my own. I am doing well now--I know things will turn out ok for you! Just keep your head up and keep praying! You are in my thoughts and prayers! |
| Kelly |
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| 03/24/06
Dear Amanda,
I am so excited to hear that you have accepted Christ as your personal Savior! Praise the Lord!
I will look for your picture in the People magazine.
I hope by the time you get this note that you are feeling much better. I am so sorry you have had to be back in the hospital.
You all are in my heart and prayers. Tracey, I'm lifting y'all up!
Love,
Mrs. Beth |
| Beth Turner from Georgia |
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| Hi Amanda,
I have been reading your mom's emails for a long time and thinking about you. I saw your picture in the People Magazine. Wow! I will keep it! I sure hope you continue to get better. We will keep you in our prayers.
Love,
Robyn Marcak |
| Robyn Marcak |
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| Hi,Amanda how are you doing?I hope your okay.I'm now in 5th grade almost in 6th grade tell Jessica that I said hi and I really miss you guys.I hope I get to go up and visit you.BYE!
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| Cheyanne,Rushing |
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| Amanda is a very pretty girl. I have had kidney failure since I was 9 years old and came across this site. I am now 32 and have had a transplant for 11 years but am on dialysis again for the last 5.
The courage of a child is amazing throughout the years that a child grows. I know my childhood was very hard and anything but normal. I just wanted to say she is an amazing and beautiful young girl. Good luck! |
| Angie |
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| Hi Amanda! my best friend and I have been thinking about holding a fundraiser for you in our park. we have to wait for summer because it is freezing. We still have snow on the ground. Also in school Iam doing a report on FSGS and I hope to spread the news with the fifth grade. Maybe i can tell them about your website! Gee I hope you feel better, it must not be easy. Try and E-mail me back! :) |
| Katelyn Klimowich |
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| Amanda, Kaitlyn and I miss seeing you at Stanford and continue to pray for you and your family. You always put a smile on Kaitlyn's face. Tell your mom we said hi. |
| Kelly and Kaitlyn Rose |
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| Dear Amanda,
I'm so glad you're enjoying your Crocs! I love mine too.
Love,
Mrs. Beth |
| Beth Turner from Georgia |
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| hi this is krystine and i was just wondering how you were doing and i just wanted to say hi |
| Krystine Redmond |
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| to amanda and family, I am keeping you in my prayers. I hope this finds you and your family well. Please keep me updated. Thanks |
| Ashleigh Clute |
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| It brings me sorrow that people cry for wanting a toy, or for wanting their way, while others cry for the sadness and pain which lies beneath their hearts. Just remember that their are people who care for you. You are a good role model for anyone. |
| Claire Lazar |
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| My daughter Madison is 6 and is in the first grade. I also have a son named Matthew who is in the 4th grade and is 10 1/2.
We found out Madison was sick the fall of 2003 when she was diagnosed with Nephrotic Syndrome. The normal story of waking up with swollen eyes and severe edema was how it all came about. I really think she had it long before then as there were little symptoms along the way but were always passed off as nothing to worry about by her pediatrician.
She had her first biopsy that year and has had one each year since then. She just had her third one and we went yesterday for the results. To look at her you would never know she was sick. She feels good and is able to go to school and do all the normal things a 6 year old should do. However, the disease is there and is progressing in spite of the many medications she is on.
We know the meds help and are what is keeping her from being in the Nephrotic range, but the meds aren't stopping the progression. We were heart broken yesterday to learn that the disease has gone from 5% scarring to 25% just in the last year. We had hopes that there would be no or little additional scarring, but it wasn't to be. Madison being only 6 has no idea of what can happen nor understands why I was crying yesterday as we got that news. She is very smart but she is too little to be told what exactly is going on with her body. She just knows she has to take a lot of medicine and has to have blood drawn a lot.
We continue to not let our faith be wavered and trust in the Lord to take care of Madison and get us through this. We also try to help the Nephcure organization by hosting an annual golf tournament each year.
When Madison first got sick I stumbled across Amanda's website in my desperate attempt to find answers. I have been praying for Amanda ever since then, as well as Tracey and the rest of their family. I draw strength from Tracey as she pours her heart out on the website. So their site has been a source of inspiration and such a blessing to me in spite of the hardship and trials they face. My heart aches for Amanda and it is not out of sympathy but out of compassion that I try to let them know we care.
I try not to be afraid of what the future holds for us but it is hard. We do have so much to be thankful for in spite and we give God the glory for those blessings. I believe God wants us to bloom where we are planted so that is why I pray for Amanda and do what I feel led to do to help.
I try to be an encouragement to others facing this same thing, that's what the Bible says to do.
Take care,
Beth
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| Beth Turner |
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| hey how u doin ythis is Andrea i had nephrotic syndrom to but i just believe in god and i kept sayin i am healed and guess what im doin graet on more med no more nothing i havin been sick for like 10 months im doin greatso i hope u doin good to i been prayin for u and my family so i hope god bless u and healed i want u to get betta put u will soon real soon u wish will come true if u just believe in yourself and god..................love Andrea <3 hope u get betta soon |
| Andrea ~N~Family |
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| Amanda, We are sending our love and prayers for your body to become healthy again. |
| Your Friends |
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| Hi Amanda, I'm from the LLU dental school and listened to you telling your story in December '05. I will keep you in my prayers and on my church prayer list. I'm excited for your upcoming trip to Disneyland and hope you are feeling well enough to enjoy it soon. I wanted to visit you in your room at the hospital, but was unsure where you were. If you are up to a visitor, please let me know. |
| Margie |
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| Amanda&Tracey,
Keep up the faith,it will get
better.My prayers are with you.
Helen Guzman |
| Helen Guzman |
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| Hi amanda. I have kidney problems too. I will keep you in my prayers. Is there a place to send you a card? If you would like to visit my page drop me an email. |
| pam |
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| Amanda & Tracy,
I have lost touch with you. Please call me 888-465-3849 ext 4 at the Chargers or on my cell 858-722-6752. My son, Brandon, had his transplant Oct 4th of 2004 at Stanford. |
| Linda Gandy |
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| Dear Amanda, It's Katelyn again. I'm still praying for you and I still believe that you can be cured. I hope you have a happy holiday and that you get a lot of presents. Merry Christmas and a hppy new year! |
| Katelyn Klimowich |
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| how i can send you help pls. advise me coz i am live in india.
Masoom Akhtar Ansari |
| New Delhi. India |
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| Hey Amanda, how is my favorite camper?? I have been hearing some great stories about you swimming and heard that you have become a great diver!! I can't wait to see next summer at camp! Hope all is well...tell your family and Dr. Yorgin hello for me. I hope you have a wonderful Christmas and the new year is filled with lots of laughter and great health. |
| Cathy Costaglio |
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| Hi Amanda & Tracey... it is Brandy from Packard. I heard about your site and thought I would check it out, we all miss you and hope all is well for you at Loma Linda. You are such a sweet girl and I am sure that you are making friends with just about everyone, just as you did at Packard. We hope to see you at camp again next summer... send me your e-mail, I have some great pictures of Amanda from camp. |
| Brandy |
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| Just a note to let you know that our family here in Georgia is still thinking of you...in our hearts and more importantly in our prayers. Our little Madison has FSGS too, she is 6. I just wanted to wish you all a Merry Christmas.
With Love,
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| Beth Ann Turner from Sandersville, Ga. |
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| Dear Amanda, You are a beautiful and amazingly strong little girl. My best friends daughter was diagnosed at the age of three with Nephotic Syndrome. She had a tough year but is doing well. I will keep you in my prayers. I was really touch when I read your story. God Bless you and your Family. Happy Thanksgiving. Denise Cameron |
| Denise Cameron |
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| Hi Amanda, I hope you get well soon I really miss you. |
| Krystal Byars |
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| Hi Amanda,
I just learned about your story on the website today from your grandmother. I spoke to her on the phone today to reach your mother. I have been reading your story for a long time and thinking about you. I wish I had known about your situation long time ago. I guess your mother and I lost contact for few years. I am so sorry to hear about what is happening to you. I am shocked. I sure hope the doctors can find a cure to ease your pain. We will keep you in our prayers.
By the way, your mother and I were roommates in college back in the late 80's. I miss talking to her. I hope to hear from her real soon. I will be coming out to California the first week of October. |
| Robyn (Slaughter) Marcak |
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| My 6 year old daughter has been recently diagnosed with Nephrotic Syndrome. After 3 months of steroids, IV pulses and even chemo she has not responded. We are going to do her biopsy this thursday to confirm the diagnosis of FSGS. When I showed my daughter her pictures, she said "hey mom she is wearing a mask just like me" I explained to her that Amanda has the same disease and how brave Amanda has been. Thank you for sharing your story. I know there are many ups and downs of this disease, but sharing those ups and downs can keep other parents aware of symptoms to watch for and treatment options. We pray every night for a cure and know we are praying for you too Amanda! Thanks and God Bless. |
| Renea Orr |
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| Hi Amanda,
I hope you get better I miss you. E-mail me if you can. I want to go visit so i,ve been begging my mom to go see you.I Hope to see you.
bye.
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| Cheyanne Rushing |
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| HI MY DAUGHTER HAS FSGS AND SHE STAY SICK A LOT IF I HAD ANY MONEY TO GIVE YOU I WOULD BECAUSE I KNOW THE PAIN YOU ALL ARE GOING THROUH IT HAR WHEN YOU JUST DONOT KNOW WHAT THE NEXT DAY WILL BRING TO I HOPE YOU GET EVERE THING YOU NEED FOR YOUR CHILD I WILL PRAY FOR HER AS WEL I PRAY FOR MY CHILD |
| MUSETTE SPLUNGE |
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| Tracy you are always in my thoughts and prayers. I e-mailed a couple of years ago, but just this night rethought of you guys. God Bless |
| Janet Hinds |
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| amanda,
Hi, I am jessica and I am 13. I play for samaba and am on the B u14 girls team. your dad coacjes the A team.
I am so sorry about what has happened to you. You are an amazing little girl and are so strong. you and your mother are incredible. I will pray for you every night and hope that you get better. I am truly amazed at how strong and hopeful you still are. I ca only wish the best for you and your family. I know you will have a life of succes and happiness after this disease passes you. You will bat this disease. Good Luck. I know you can do it.
love always,
jessica<333 |
| jessica |
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| Dear Amanda: Just yesterday I learned about your web page from some friends of yours in Carson City. I wish I had known sooner. I have known your Grandpa, Grandma and your Mom for many years. I have known about your problem for a long time and have kept you in my daily prayer. I pray that God and His Son Jesus will performed on you the greatest miracle that the world has ever heard of. Also tell your mom that MISTER Turner wrote you a short note. Your Mom grew up with my daughter and some day God willing I'll tell you of the troubles that they got into together. In all the years that I knew your mom I could never get her to call me Norm it was always Mister Turner.
Dear God, bless Amanda and if it is Your Will bring her healing. Please send your Holy Spirit to bring her comfort and peace. In the name of our Savior JESUS I pray.
Next time you read your Bible please read Roman: 8: 28-39
Give my love to your mom and grand parent and you a special hug from
MISTER Turner
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| Norm & Mable Turner |
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| Hi Amanda - I wanted you to know that I am thinking about you and praying for you. I have a son your age. I read that you did kayaking at your camp. My son Taylor has never kayaked before. I did one time in Monterey and boy was it fun. I saw some otters in the water. I hope you saw some interesting things too. I have you and your family in my heart. |
| Fayne Muldoon |
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| Dear Amanda,
My name is Nikia Taylor I'm 17 years old and im from Chicago, Illinois. I know we don't know each other very well but you are such a beautiful young lady, and i really do hope you get better really fast. You will be in my prays every night and that is a promise.
Sincerly,
A new friend
Nikia Taylor |
| Nikia Taylor |
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| Oh, Amanda! I have been praying for you evernight and I hope that you're doing better. I hope that you start to get better. I pray that you overcome this FSGS, but having kidney diese isn't going to stop you from enjoying life. Infact, I know that no matter what happenes you'll be strong. I am also praying for your family. Tell your mom that she is a strong spirited person. You are too. Your whole family is strong spirited. I hope that someday you can overcome this FSGS and until then I'm praying for you. |
| Katelyn Klimowich |
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| Amanda
My little brother whom is now 10 was diagnosed with Nephrotic Syndrome when he was a bit before 7 i think. He is in remittion right now but that doesn't mean he's all better. My brother now he has a lot of troubles he has asthma, stomach relex, some lung desiase and now he has to get 3 more opperations.. he just had one a month ago. His next one is june 1! He is a typical 10 year old. He loves hockey, haning with his friends, playing on his inline and ice hockey team, going to his hockey academy (school), watching tv, the typical kid thing. I am 14 and i have had to be his sister and help him with this and it's really hard so i know how your sibblings feel! Its rough but in the end it all pays off to have the person ill better right? Well my thoughtd and prayers are with you, Amanda, and your family! love
Kersten
please feel free to email me! |
| Kersten |
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| my grandaughter has just been diagnosted with MCD and possible FSGS. Where can we turn for information. |
| Tere Hodges |
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| My daughter Kathleen has been a patient of Dr. Cutler's at Loma Linda Medical Center since he diagnosed her at 22 months of age with MCNS. He and his partner, Dr. Sahney, are excellent nephrologists and look forward to working with Dr. Yorgin. I am anxious to meet Dr. Yorgin and find out more regarding his plan of treatment for kids with FSGS. My daughter Kathleen's nephrotic syndrome progressed to FSGS last year and she was placed on the national transplant list in November of 2004. She received her new kidney on April 20, 2005 at Loma Linda Medical Center. She is currently undergoing plasmapharesis 3 times per week with excellent results so far. I too hope we can find a cure for this disease so that other children will not have to suffer as ours have. I have contacted a doctor at Brigham and Women's hospital in Boston who is currently doing research on familial FSGS. I hope to include our family in his research as they seek to find a cause and cure for this disease.
I hope we will have an opportunity to meet sometime as we share our struggle for a good life for our daughters.
Sincerely,
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| Frances |
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| Tracey. This is Tracy. It has been awhile, we have both been battling with diferent aspects of kidney disease. I apologize it has taken some time to follow up, but, I pray for you, Amanda, and your family every day. We live in So Cal, so if you ever need a shoulder to lean on or anything, please remember that I am right here for you. Unfortunately, it is hard for many to understand all of the complications and effects of kidney disease, and how many different aspects there are. Please, please let me know if I can help in any way. Love, Tracy |
| Tracy Hastings |
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| Dear Tracy, Amanda and family:
I am a friend of Amy Lenord's in Colorado and have been following your stroy. I feel very drawn to your situation for many reasons, yet my situation is different. I am the daughter taking care of my mom who is still very young for all that she has endured in the past nine years. I have young children of my own that pulls your struggles to my heart. I hear similar requests and stories form my mom as I hear Amanda. (I have a little sister named Amanda ;) I am anxious to purchase several of the bracelets to visually spread the word for financial needs. I have a very deep understanding of both of your feelings and send you prayers each day I speak with God. I am certain he is listening and everything truly does happen for a reason. Keep remembering this Amanda: Every day is a good day, some days are better than others, but everyday is good! My mom and dad have been telling me that since I was a litte girl. There is much to hold onto i that little sentence. I send you warmth and the strength wrapped in a deep long hug. My thoughts are with you often. Be strong and hold onto the love in your family, it's the very thing that gets me through each day! Love, Kim Slayton |
| Kim Slayton |
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| Get better soon, Amanda. Always remember that God loves you and watches over you every day. My daughter is due to have a baby in two weeks. She already has a little girl almost three. There's a special place in my heart for little girls as I have four daughters of my own. Love, |
| Pat McCage |
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| Amanda... you seem to be the strongest little lady there is! May God continue to watch over you and your family and give you the blessings you deserve. I am a friend of you mom's friend, Lynn. Continue to be strong....
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| Kim Rogers & family |
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| Amanda I truly hope you are feeling better. It's Katelyn again. I would love it so much for you to feel better. I told this to my friends and I think it will make you feel better. You should say "I think I can, I think I can,"and you should say that a lot. I really hope you get better. |
| Katelyn Klimowich |
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| Hello Tracey! This is #14 remember me? Lori Shelly- I have been praying for Amanda and hope that God looks over her closely during this tough time. Please know that I and my family are thinking about all of you at this time. Sending many smiles, hugs, prayers and tons of love your way!!!! Please take care, #14 Lori |
| Lori |
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| Hi Amanda-
My name is Amanda too! My Mom (Lesley Plank) played softball with your Mom at CSUN. I'm sorry you are not feeling well. I will keep you in my prayers and will think of you often. |
| Amanda Phillips |
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| Dear Amanda and family,
Just a note to let you know our family still has you in our hearts, thoughts and prayers. Our daughter Madison, who will be 6 on 05/19, has FSGS too. Yesterday we hosted a golf tournament for Nephcure in hopes to raise awareness and funds towards finding a cure for everyone dealing with this dreaded disease. You were in my thoughts yesterday as we were so blessed with support at our tournament. Ed Hearn, former NY Mets World Series '86 baseball player, joined us for the day. He took time to shake hands and meet everyone there. He too has FSGS and knew what we are going through. He delivered an inspirational message encouraging everyone to "keep swinging" in spite of life's curves. Amanda, I encourage you to keep your faith. Jesus loves you now as much as ever. There won't be any need for medicine or needles or pain in heaven. We have that to look forward to. In the meantime, try to remember that though the nurses have to inflict physical pain, they do so because they want you to get better. They give their life to help others. I don't know how they do it, but I am glad they do. Tracey, you are a wonderfully strong mother, you are an inspiration to me. Thank you for taking the time to keep us updated on your lives. Don't feel guilty when you don't have time to write, just know that we are still praying for you. |
| Beth Ann Turner from Sandersville, Ga. |
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| Dear Tracey, Amanda, Jacob and Jessica, We miss you and we are very, very sad and concerned to read your messages of all that you have experienced during these past months. So much difficulty and also so much love and faith. We will always keep you in our prayers. My niece, Alison Hansen was diagnosed with Henoch-Schonlein Purpura in January. She lives in southern California. I think that maybe she has been to Loma Linda. I just thought that I would mention her name just in case you had met her in the hospital. Both she and Amanda are two of the prettiest little girls. We will share your story so that heaven will receive so many prayers in love for you. We are with you. |
| Gail Struble & Family |
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| Hi Amanda - We are praying for you. Miss you at church. Take care sweetheart. Remember Jesus Loves you more than anything. Hope you can come back to church soon. |
| Bob & Barbara Sanders |
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| Our daughter, Trinity, age 5, has had many health related issues. They do not come close to little Amanda's. God bless your whole family. Hugs and the warmest wishes in hopes for a cure. I know how hard it is to see your little one hurt. Hopefully she will get better soon. |
| Mom of Three - Terrie Slayton |
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| Amanda, I am a nursing student who recently learned about Nephrotic Syndrome and am writing to let you know that your story is both very inspirational and educational for myself and peers alike. Stay strong. |
| John Garcia, Corpus Christi, TX |
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| Hi Amanda it's Cheyanne I miss you alot I hope your doing please write me when you can |
| Cheyanne Rushing |
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| Ih I hope you fell better my famliy is praying for you.I am vary sorry.My famliy is conting on you.You are a vary brave girl.Well my famliy is praying for you good luk. |
| Amanda M.cole |
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| Hi Amanda It was great to see you at church the other Sunday. I think you look great. Your smile is heart warming. The Loma Linda Hospital is the best yet. My grandmother was a patient there. Our family is grateful for the help, love, kindness and care she received. Amanda. sometimes it's impossible to understand why things are going on, but this I do know, God does see us through everything. Right now He has given you a friend, Kelly, to be with, encouraging and listening and talking to. I continue to pray for you and your family. You are really helping me. Much love to you. |
| Marilyn Roanhaus |
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| Amanda:
My son Nathian just had his heart/kidney transplant last Friday, he is doing well. We found your amazing story on a search on the Internet. We just want to wish well and tell you that you are on our prayers.
Say hi to your sister. brother, mother and randmother and God bless you all. |
| Juan Gomez |
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| Dear Amanda, im soo proud of you that you survived the kidney trans plant.im glad you are getting better . you will always be in my prayers and dreams! god bless you child! |
| nikki miller |
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| Dear Amanda its Katelyn again!I was reading your story again.I said to myself..."god is with you all the time every time,so if you believe you will come over this so called 'FSGS.'...so say you think you can and always believe.I wish i could meet you so badly.You look like great friend,person and daughter.Keep up the good work! |
| Katelyn Klimowich |
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| hey amanda im soo sorry about your kidneys . my friend katelyn klimowich told me all about you . your with me in my dreams and prayers.get well soon!! |
| nikki miller |
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| Hello Amanda, I hope you are feeling good and wanted to let you know that I am thinking of you, always. Today is your moms Birthday and tell her I wish her an absolutely wonderful day. She is such a strong woman and I respect and admire her strength. This web site has done so much in getting the word out about this disease and your mom takes the time to answer every message she can while managing her very busy schedule of school, hospital visits and alot more. There has been college professors and nursing teachers write in and ask questions to you and your mom. There have been many families who have written in to ask questions about something their child or loved one has been experiencing related to the disease. This web site and your mom have done a good thing in informing those who wanted and needed to know about this disease as much as she can. How many times can I say how proud I am of you and your mom and the incredible strength you both have. Tracey, I wish you the Happiest Birthday I can ever wish to anybody. Love, Lynn |
| Lynn |
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| Amanda,I met your grandma on the airplane a couple weeks ago. I told her we would keep you in our prayers. I have an 11 yr old daughter. We will both be praying for you and your family.
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| Joy Lewis |
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| Amanda you truly are an insperation to all of us. Your in our thoughts and prayers. |
| Dr. Aghakhanians |
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| omg that story is so sad i hope everyone is alright have a wonderful life. |
| Danielle |
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| Dear Amanda: I teach nursing at a college in Texas and I was surfing the net for a cool site about Nephrotic Syndrome. I like to have students read 'real' stories about different problems because ya'll can tell it so much better than me. So, for homework, 50 of my students are going to visit your site. Its a wonderful site and I think you will have alot to teach them. What I want to know --- is there anything you think you'd like nurses to know? Like, what do you think they could really learn to do better (based on your experiences). I'd like to know too because even though I teach, I still work in a pediatric ER here in Corpus Christi.
Anyway, good luck with your new kidney and thanks so much for sharing
your story. |
| Liz Whitehurst |
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| Dear Amanda,
I am very moved to haer your story. You are very brave. While I was in the middle of your story, i was scared that there would be a bad ending, when I finished the story, I was so glad the you were alright. I hope that you live to my a hundred-and-ninty-nine years old. May ypu have health and happiness always. Love forever, Rebecca |
| Rebecca Simensky |
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| Amanda how are u today |
| Laurissa Schellenberg |
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| Hello Amanda, Tracey and brother and twin sister. I went onto your website to get an update on Amanda and see a lot is going on that is out of your control. We are the other Carson City people who are treating at Stanford, but recently ran into a road block and flew back to the Cleveland Institute for a new regimen of care. Ashley is responding quite well, after both, she and I took a break from our normal routine and I left my state job and she left her high school and twin sister to receive home tutoring. Today, January 28th, marks Ashley's 1st full week of full time studies and she's ready to attend her 2nd drivers training class tomorrow all day at the community college. I know you and the family have huge faith and I would ask you all to stay strong. I will pray for Amanda tonight and update my girls of her situation. Tracey--I will be in Stanford next Friday for a check up and will try to see you--hopefully not in the hospital. Our love and prayers--Jean Ann, Ashley & Briana |
| Jean Ann--Carson City, NV |
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| THIS IS ALL THE KIDS NAMES IN ARE CLASS,JACOB,TAYLOR,KENZIE,MALLORY,NYCOLE,WYATT,KYLEE,CHACE, |
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| hi amanda how are you doing i hope you will get better i bet it is hard being sick all the time |
| Jacob andZak . |
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| Hi Amanda, I was just going through alot of old papers to file, and came across "Your Story" that I had printed and saved. You probably don't remember me, but I met you at the Ronald McDonald House in California. I am Ty's Mom. His little sister was in the same hospital as you were. How are you and how is your Mom? Tell her hi for me! I have tried to e-mail her several times, to ask about you, but the e-mail only returned to me. I think of you often, and hope to hear from you, Love, Leah & Ty |
| Leah & Ty Kirk |
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| DEAR AMANDA,HOW ARE YOU DOING? I HOPE YOU GET BETTER SOON. |
| JACOB |
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| HI amanda hope you get better we are praying for you. |
| chace |
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| Amanda: My thoughts and prayers are with you. You are very brave!!! Please know that people are out there that don't even know you, that are praying for you to be well! |
| God Bless, Lisa |
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| Dear Amanda,
I am ten years old and in forth grade.I have read your story, and touched by your recovery.I live in New Jersey.I do a lot of sports.I do cheerleading,basketball,softball,and I play piano and flute.I plan to become a pediatrician.In case you are wondering I am related to Lisa Klimowich.(SHE IS MY MOM!)You are totally in my prayers.God bless you. |
| Katelyn Klimowich |
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| Tracey- I am touched and very frightened by your story. My name is Margot LaPointe. I live in Brimfield, MA with my husband David and son Nathan, 12 years old. Nathan was recently diagnosed with Nephrosis. He is two weeks inot steriod therapy and is showing some improvement. Without a Biopsy, there is no way to know for sure what type of Nephrosis Nathan has or the ling term prognosis. He has very similar symptoms that Amanda does and I worry every day that he will experience more sickness and pain as time goes on. Nathan had Mono in late October and the Doctors at Childrens believe the two are related. I wrote because I am amazed at Amanda's strength and want you to know that Nathan and I have included her in our prayers. Bless you. |
| Margot LaPointe |
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| Dear Amanda,
Just a note to wish you and your family a Merry Christmas. I still think of you and pray for you. We are praying for a cure for FSGS and similar diseases. Our 5 year old daughter Madison just had her 2nd biopsy and her diagnosis was changed to FSGS, we are very saddened by this, but know our strength is in the Lord. I hope you get to play in the snow! My kids are praying for
snow here in GA.! |
| Beth Turner from Georgia |
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| Dear Amanda we are praying for you howare you doing? We are sorry that you are sick! |
| Wyatt ChRIs |
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| HI Amada I'm praying for you hope you get well amanda |
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| im so sorry to here that amanda |
| kielie |
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| Hey guys, Just a short note to let you know we're thinking about you, and you're all in our prayers! Merry Christmas! Love, Lisa Morigeau, Kirsten and Rachel |
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| DearAmada, Hope you geat beter |
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| Hi its Jacob and Zak.We were just wondering how you were feeling.We were also wondering how many times you've been in the Hospital.And we were wondering how many times you've been in school.We have to go see ya. |
| Jacob andZak . |
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| I frequently read your updates and continue to be amazed at your family's strength and admire your faith. Keep hanging in there and I hope your family has a very merry Christmas. |
| Kelly - LV, NV |
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| Tracey: I don't know where to start. I stumbled upon your website the other night when I was feeling very sad and sorry for myself. My son, Ian, had a transplant in August, 2004, and we have been through numerous complications. All that I am told are very abnormal for a transplant child, but, when reading through your website, nothing, compared to yours. You have given me strength, and more importantly, I know that my son is not the only one's with feelings of "why did we even do this", etc., any more. If you would like to email me, please do at trahastings@yahoo.com. My son, Ian, is part of a study of non-steroid post transplant studies that started at Stanford. Actually, when he contracted EBV, one of our dr's. contacted Stanford regarding the study because Ian was in such a bad way. I pray for you and Amanda, and I think of you often. You are giving me strength. Tracy Hastings, Huntington Beach, California. P.S. Ian had his transplant at Cedars Sinai in Los Angeles. |
| Tracy Hastings |
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| I just sent you a massage but I just want to say don`t say thank you to me .I say thank you to you.And I just sent the wrong EMAIl. |
| Kaelyn Castle |
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| Dear Amanda, I feel so bad for you I wish I new how you felt. My name is Kaelyn Castle, and I live in Bermuda.I am real close with God so I will get my family to pray for you.Prayer is power. |
| Kaelyn Castle |
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| Hello Amanda, i saw ur story on this page when i was surfing the net. God knows i was broken in the heart and tears shore up in my eyes. I cannot do more than say a this little prayer for u..."may the Good lord, who has inspired the doctors to unveil this ailment, grant them the ability to treat u...He will heal u, for this reason was the blood shed" Amen. Myself and my friends wish u a speedy recovery. Luv from Nigeria |
| chris |
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| hi amanda this is andrea i just got home from the hospital i am doing fine i hope u doing better i keep praying 4 u and me to get betterand me and my family send alot of love to u and ur family talk 2 u later and god bless |
| Andrea |
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| I recently left you a note about my son Drew being diagnosed with same disease as your daughter Amanda, unfortunatly Drew passed away suddenly on September 3,2004.I wish there was more known about this rotten disease that affects so many children! My thoughts are with you. |
| Shelley Poirier |
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| HiAmanda, We hope you feel better.Tell your familey we said hi. How is your new kidny working? |
| Nycole and Leanne |
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| Amanda is a strong child and tracy, you are a strong mother. May god bless your family abundantly! Tomorow my son John will be having a kidney biopsy to see if he has a disease and how it can be treated. He shows no outward signs of illness. It was detected in a routine well child check-up that his urine had blood and protein in it. We are a faithfull family and believe in the power of God. My prayer will be with amanda and the rest of your family for these are hard times. I wish Amanda good health and blessings from God.
Peace in God
Lisa Klimowich |
| Lisa Klimowich |
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| hi Amanda my name is Abby. I hope you feel better. |
| Abby |
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| Amanda, stay tuff and keep thinking positive..Have the attitude that you are going to beat this it is not going to beat you. I pray for you and know what you are going through. I have FSGS. Keep smiling and positive.
With sincere wishes
Jim Warnsing |
| Jim Warnsing |
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| Hi Amenda I was in your church on your 8th birthday, I think it was. I was visiting my friend Leoda Hall. I live In Calif. Leoda has kept me up to date on how you are doing. I have put you on our prayer chain, and I know that God answeres prayer and that he heals today just like he did in the days he walked the earth. I will send this site to as many people as I can. You are a beautiful precious child of God and I know that he is holding you close to His heart and that He loves you and your family very much. May God Bless you and your Family. |
| Kathleen Stockman |
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| Dear Tracy and family, This is from your friend in Dayton, NV. We are all praying for you. I think of you every time I look across the street. I miss you all very much. My grandkids ask about you all the time. The updates are very helpful. Keep the faith, be strong, and God bless. |
| Janet Hinds |
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| Dear Amanda, We love you and we are parying for you. We are trying to stay strong for you, we miss you everyday. Love from Hannah, Sharron & Richard |
| The Baldwins |
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| Dear Amanda,
You are one very strong,amazing,beautiful girl.I pray for a total recovery for you.You are truly Blessed! |
| Elaine |
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| Amanada,
May God watch over and Bless you daily! My 2 year old had at heart transplant at 14 months and has had to overcome so much. I know God will heal you!! |
| Tammy Madden |
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| I, too, suffer from FSGS. I know that I cannot be alone in saying that I greatly admire your perseverance and courage, and wish only the best for you in the future. You are a positive role model for all, and deserve only the best of what the future has to offer. Best wishes, and much love. |
| Sarah Dubina |
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| Hi, my name is bernard afedzi. and I would like to understand about your information you put on the internent, so how can I get further explaination. thanks |
| Ghana |
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| Hi Tracey and Amanda. I've noticed a few college softball connections here already. Well I'm another one. I'm so inspired by your moms strength and your bravery. You must get your competitive, never give up attitude from your mom. You are such a beautiful little girl and you're always in my thoughts and prayers. |
| Chris Madrid |
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| I'm so sorry about your sickness. |
| chace |
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| Hi Amanda my name is abby. Hope you get beter. |
| abby |
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| I'm Kenzie and I'm sorry your sickness and I know your friend Sue Strekal |
| Kenzie Price |
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| Amanada- I hope yoyu are starting to feel better. I am battling my own kidney issues and cant imagine how hard it most be for a little girl your age to go thru all of this. |
| pam |
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| Amanda,
Appreciated the update on your families move to California. Trust your test today goes well. Know that it's hard to continue to continue with these various tests and not get the answers we'd all like. thought you might enjoy these recordings from flight maintenance people while they try to fix airplanes based on pilot's notes.
After every flight, pilots fill out a form called a gripe sheet, which
conveys to the mechanics problems encountered with the aircraft during the
flight
that need repair or correction.
The mechanics read and correct the problem, and then
respond in writing on the lower half of the form what
remedial action was taken, and the pilots review the
gripe sheets before the next flight.
Never let it be said that ground crews and engineers lack a sense of humor.
Here are some actual logged maintenance complaints and problems as submitted
by Qantas pilots and the solution recorded by maintenance engineers. By the
way, Qantas is the only major airline that has NEVER had an accident.
(P = The problem logged by the pilot.)
(S = The solution and action taken by the engineers.)
P: Left inside main tire almost needs replacement.
S: Almost replaced left inside main tire.
P: Test flight OK, except auto-land very rough.
S: Auto-land not installed on this aircraft.
P: Something loose in cockpit.
S: Something tightened in cockpit.
P: Dead bugs on windshield.
S: Live bugs on back-order.
P: Autopilot in altitude-hold mode produces a 200 feet per minute descent.
S: Cannot reproduce problem on ground.
P: Evidence of leak on right main landing gear.
S: Evidence removed.
P: DME volume unbelievably loud.
S: DME volume set to more believable level.
P: Friction locks cause throttle levers to stick.
S: That's what they're there for.
P: IFF inoperative.
S: IFF always inoperative in OFF mode.
P: Suspected crack in windshield.
S: Suspect you're right.
P: Number 3 engine missing.
S: Engine found on right wing after brief search.
P: Aircraft handles funny.
S: Aircraft warned to straighten up, fly right, and be serious.
P: Target radar hums.
S: Reprogrammed target radar with lyrics.
P: Mouse in cockpit.
S: Cat installed.
P: Noise coming from under instrument panel. Sounds like a midget pounding on
something with a hammer.
S: Took hammer away from midget.
Smile God loves you and your family and so do all your friends who know you through Aunt Gay in Atlanta. Peace and prayers.
bob hayes
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| bobhayes |
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| Hi Amanda,
You don't know me, but I'm good friends with Gay Allen, your cousin in Atlanta. Just wanted you to know you are in my thoughts and prayers. You are such a strong girl and carry a wonderful, uplifting positive message for all who have the privilege of knowing you. Keep smiling :-) Your courage and faith are very inspiring to me. |
| Charles Needle |
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| Dear Amanda, Tracey, Jacob and Jessica, Hi!! We miss you. I ALWAYS think of you when we walk by your house on the way to school. I hope that you are all doing well in your new home. Can you feel the love we are sending you from Carson City? :) We are remembering you in our prayers. |
| Love, Gail Struble and Family |
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| Our Ladies' Tuesday night Bible study continues to pray for Amanda's health and well-being. We are also praying for the family as you relocate and as you again can be a whole family. Our love and hearts are with you in this valley through which God is leading you. |
| Glenda Jansson |
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| MAY GOD BE WITH YOU!ALL THE BEST TO YOU! GET WELL!! |
| pam hall |
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| Dear Amanda,
Just a note to let you know that our family is still thinking of you all and praying for you. I hope you are happy in your new home. |
| Beth Turner from Georgia |
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| Hi Tracey and Amanda, My name is Delanee and I also played softball with your Mom at CSUN. We actually lived together for a time. I enjoyed looking at your pictures. I noticed you playing with a doll house. I have a little girl who is 3 years old and loves to play with dolls. I know she would love to play dolls with you! You keep up fighting so we can get together soon and play dolls ( if that is not to babyish for you now). I remember meeting you when you where just a little baby. I really would like to meet the very courageous and brave young lady who have become. Your strengh and faith is amazing! Tracey your strength, courage and faith is an inspiration to me. Lisa has keep me updated on Amanda through e-mails. My children and I, pray for you all every night in our prayers. I guess this experience is sort of like running a 10K. No matter how much you may want to give up, you don't, you keep the faith and you just keep going to the end. I know you can make it. Stay strong. We all are thinking of you and sending prayers! |
| Delanee Durham and Family |
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| Hey cutie, we miss seeing you and laughing and playing. Can't wait until Kelly is no longer getting treatments on 2 North so he can visit you. That should be in August. Hope you are finding things to stay busy with and enjoying your summer. I saw you when we were there this last 2 weeks, but you were asleep so I just talked to your sister and your Mom. Take care kiddo. Love you, Becky Moravec PS. Kelly says "Hi" |
| Becky Moravec |
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| My 4 yr old niece has been diagnosed with minimal change nephrotic syndrome, she is on steroids and eating a lot but has gone down from a size 5 or 6 to 2 toddler and is having severe headaches. Any advice? |
| Kay |
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| Hello we are your next door neighbors (the ones with the pig :) ). Even though we hardly had time to get to know each other, our thoughts and prayers go out to you and your family. We hope to see you soon! |
| The Mercers, Scott, Shirley, Melissa and Ashley |
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| Hi Tracey, I don't know if you remember me but I certainly remember you. I was the CSUN player with the nicest tan.I have been speaking with Lisa and she has caught me up and has been keeping me up to date on Amanda. Amanda, you, and everyone else in your family are in my prayers daily. Pri |
| Priscilla Becker (Pri Rouse) |
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| Hello Amanda and family from Colorado! My 8 yr old daughter, Ryann, has nephotic syndrome with the probable cause of fsgs. My heart and prayers go out to you. Your strength is such an inspiration. I have had a very hard time dealing with Ryann being sick but hearing your story makes ours seem so minor. I will keep you in my prayers and keep watching for your email updates. |
| Gina Morris |
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| Hi Amanda,
This is Cheyanne's mom Jamie. I hope you remember me. It has been a while since we talked. I have been thinking about you and your family lately so I thought I would check and see how you were doing. I will pray for you all. I miss you guys. WOuld love to hear from you. Jamie |
| Jamie Rushing |
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| Hi Amanda,
Hope you are doing better. I have a grandson that has FSGS. He also has been in and out of the hospital. Our prayers are with you. |
| Debbie Howland |
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| i just found out my daughter his this diease we think she has had it for many yrs but her body just couldn't take it anymore she is now 23 and for a while we went crazy trying to figure it all out now that she's on meds it's only been 2 weeks she seems to be responding she lost 30 lbs of water weight and her protein levels are goingnear normal again she won't beout of the woodsfor at least 2 yrs but we are keeping our fingers crossed. and for Amanda my heart goesout to her and her family iunderstand what it feels like and i will pray she gets well and fightsto beat this. i am a daycare teacher and this story of Amanda stoledmy heart i have a great love for any child. i wish u all the best! you family is in my thoughts and prayers |
| helen premo |
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| Dear Tracey and Amanda, Hello from Woodcrest Lane! As always we miss you and send you lots and lots of love. We pray for you always and we are happy to see our church praying for you, as your name, Amanda, is in our church bulletin each week. It's beginning to get warmer here but not too bad. It feels good to be able to be outside more. I am wondering how the weather is in your area? Is it nice? I know that the Bay Area in the summer can be cool, but maybe you have some real nice days, too. Mark is in New Mexico on a fire right now. He left last week, but he should be home soon. He is located in the area where the original Smokey Bear was found as a bear cub clinging to a tree after a fire. His paws were burned, and I believe he spent the rest of his life in a zoo. Mark saw his gravesite the other day and also visited the Smokey Bear Museum. I would love to see that, too. We are thinking of you and we send you lots of hugs. God bless you both. |
| Gail Struble and Family |
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| I hope and pray that you will get better soon.My wife have the same kidney disease that you do.and we're fighting hard to cope and get over it.my prayers go out to you and your family.please keep your faith. |
| The Peavy Family |
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| HI Amanda. My name is Kim and I had the honor of playing college softball with your mom. She was a crafty lefty that fooled me every time I tried to hit off of her at practice. I heard about your Story from some of our former teammates and I want you to know that there are a bunch of us thinking about you and sending our good vibes and energy. Your strength is absolutely amazing. Your mom's is not too shabby either. Stay strong, stay positive. |
| with love, kim |
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| hi amanda this is andrea the 13 year old trust in god he can help u like he helping me b-cuz i have the same thing u got i know i will be fine god can help u too pray every night i will keep u in my prays every night i be there for u if u be there for me so lets stick to gether it will be fine let god do the work he got ur back like he got mine like my mother said the doctors cant fix u but the man up above can that is god pray every night god answer every time u pray he is there for u amanda i have faith for u stay strong and i wll too stay strong always love Andrea& family |
| Andrea&Family |
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| Hello amanda
How are you doing today I hope Your Okay I am a mom who have a precious little girl like you and she is sick just like you she have the same problem you are having and her name is Andrea she is 13 years old but Andrea is sick also but just know that God will Bless you and Andrea and you both will be in the best of health and beable to play and eat your ice creams and cookies again and have alot of fun with the other children I pray for you baby and I wish you the best. Love Andrea & her Mom |
| Ms. Rhodes & Her Daughter Andrea |
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| My thoughts and prayers go with you and your family Amanda. |
| Christine Maag |
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| Hey Amanda what's up?I was just wondering how you got your own story online?That's really cool.Can I ask you a question?What school do you go to because I go to Del Rio do you?Well I have to do my homework now so bye bye.P.s. write me back. |
| Amanda Brennan |
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| Hey, Amanda what's up ? I was just wondering how you got your own story onlie? Thats really cool.Can I ask you a question?What school do you go to because I go to Del Rio do you? well i'v got to go now bye bye. |
| Amanda Brennan |
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| Dear Amanda -- I want to applaud your courage and bravery in fighting FSGS and sharing your story. My own son, Damien, age 5 has FSGS and has been very atypical. Here's something we are doing to help raise awareness and help Damien to cope with his own condition. http://www.spydermum.com/ArtDollAngelProject.htm Our family knows how much strength it takes -- you seem very fortunate with your family as well. The best to all of you, you are in our thoughts and prayers. |
| Lauri Jean , Damien & Donovan |
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| hi. i am a girl from nigeria and i am 13 years old and i really love ur movies and shows. may God prosper you. i will really apreciate it if you could send me your e-mail address. i am sorry i just checked the e-mail archive and i want you to know that God will be with you and your family for his thoughts towards you are not of evil but of good(jer 29;11) i will pray for your family. please send me amanda's e-mail address so i will mail her. i am really so sorry. but i assure you that amanda will get well soon because by His stripes she is healed. |
| lois rachael |
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| hi. i am a girl and i really love ur movies and shows. may God prosper you. i will really apreciate it if you could send me your e-mail address. |
| lois rachael |
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| I read your story on NephCure's web site today. My daughter Melanie has FSGS and has lost 3 kidneys. She recenty e-mail you, for your stories are much the same. We both would like to speak with you and your Mom, please call us at if you would like to talk with us about our 9 year struggle fighting FSGS. Melanie and I both work with NephCure.Our prayers are with you. Sincerely, Brad Stewart |
| Brad Stewart |
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| Amanda (and family) Hello...my name is Misty and I am twenty two years old. I found your website by researching what I was recently diagnosed with. I have Nephrotic Syndrome for which they are researching the cause. I just want Amanda to know that a person doesn't have to be a grown up to be looked up to. I admire her courage and her ability to smile in some of those pictures in spite of so much. No matter what I end up encountering in the process of my disease, whatever it may be, I will continue to find strength in all she has been through. Thank you for relaying my message. ~Misty |
| Misty |
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| I am a medical transcriber (and full-time mom of two boys) here in California. I sometimes need to check the spelling of a word via the internet, and when I typed in plasma fresis (plasmapheresis) your site came up. The only one I might add. I read your story and just wanted to let you know that Amanda and her family will be in my thoughts and prayers tonight. I've been feeling a bit frazzled because my 5-year-old has his first case of strep throat, but now realize that NOTHING I have experienced with my children can compare to what you have experienced with yours Tracey. GOD BLESS ALL OF YOU! |
| Lisa Bernardi |
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| hey amanda, :) i just wanted to let you know that im praying for you and your family, and to encourage you to just really lean on the Lord through all of this. one of my really good friends has been going through a medical thing like this too, but the Lord has used it to touch so many people and has brought so much good out of it. so yeah just keep trusting in Him, hold on to Him with all that you have. the Lord is awesome you never know what Hes going to do with something like this, but i assure you that He will bring good out of it. check these out: philippians 3:21, 4:4-7, 4:13 :) |
| beth |
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| Tracey,
Remember me? It is Barb Flynn. I heard about your daughter and she is in my prayers. I am so sorry that you are going through all of this. Your children are so beautiful and they look just like you!! I still remember your beautiful smile and your kids have your smile!! Take care and I will keep you in my prayers along with Amanda. Love, Barb xxoo |
| Barb Flynn Levengood |
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| Dear Tracey and Amanda, Hi Friends! We do hope that you are feeling fine and perhaps today you have seen something special - like a pretty flower or maybe even a butterfly. You know what I wish I had in the backyard? FROGS! I just don't see many frogs around here although I know that they are around this time of year because I've heard them. Last summer my friend, Kathy, got some tadpoles from a nearby creek and put them in some water in her backyard and by summer she had frogs. Isn't that a good idea? I would like to try that. Today it was warm enough so we got to take our birds in the backyard, inside their cage, of course. They just love that. They like to talk to all the wild birds. We hope God sends you a special view of one of his little critters. |
| Love, Gail, Mark, Julie, Will and Alisha |
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| Amanda & Tracey~ We have continued praying for you since leaving the RMH. We think of you often. Colby misses his special friend. :) God Bless You. |
| Amy & Colby Ahl & family |
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| Hello again. Here is my Email. Mel52587s@comcast.net |
| Melanie |
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| When I look at your pictures, I see myself. I have had FSGS for almost 10 years now and have been though Peritenel Dialysis, 1 transplant, Hemodialysis, and many more complications. You seem like such a strong girl. Keep up the fight. Feel free to email me. Love, Melanie. |
| Melanie |
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| Amanda - You are an amazing young lady! I was diagnosed with FSGS when I was 15 years old and am now on hemodialysis almost 13 years later. Stay strong and keep that wonderful smile on your face! Visit me at my website sometime www.mykidney.com |
| Krissi Bates |
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| my daughter was diagnosed with Minamal change disease 7 months ago. While it's rare, I her mother work in childcare and know a family that has 2 children 2 and 31/2 years old that have this too, it's rare to even know someone that has this. Anyway, I don't know what to say other then I am so sorry and Pray for God's peace and strength. So far my daughter has had 2 relapses, it's frustrating to NOT know where or how this started. Again, I'm sorry and I will pray for Amanda and that they may soon KNOW why, what, how,etc. |
| Rhonda Mack |
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| HI AMANDA STAY STONG YOU GIVE MY DAUGHTER AND MY FAMILY HOPE |
| DOROTHY REDMOND |
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| Dear Amanda,My son michael is 9 years old.He was diagnosed with nephrotic syndrome in 1997.He has been hospitalized several times,and on high doses of predisone.It has been a tough battle that we fight daily.OUr prayers and thoughts are with you,may GOd bless you and your family. |
| Beverly |
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| Dear Amanda, You are the bravest young lady I know! You are pretty cute too! Our prayers are with you and may God be with you each and every second. I played softball with your mommy in college. We had many fun times together. Your mom is one of the funniest people I have ever met. She should tell you some funny stories, there are a lot. I have three little kids that would love to meet you someday, actually, I would love for them to meet you because you are so brave!!! Stay strong and we will meet you soon! Love, Anna Getherall-Hubert |
| Anna Getherall-Hubert |
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| Dear Amanda,
Our family will be praying for you to be healed. Our little girl, Madison, is almost 5 and was diagnosed with IgA Nephropathy and Minimal Change disease in November of 2003. I am blessed to see the smile on your face in your pictures. Stay strong and remember to pray for yourself, claim God's promises. Jesus loves you! |
| Beth & Charles Turner |
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| Hey Tracey Krista Hardin (used to be Miller) . I just recently spoke to Pre, and she told me about your daughter. I wanted to let you know my heart goes out to you and your brave little girl. You are in my prayers. You keep on fighting, Amanda. You are such an inspiration. Your mom and I played softball together in college a LONG time ago. We had lots of fun. I bet she's a pretty cool mom, huh? I have 2 children...Kayla age 7 and Kyle age 6. I just wanted to let you know my heart goes out to you, and I will be praying for you everyday. God bless all of you. |
| Krista Hardin (Miller) |
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| Tracey and Amanda, I keep looking for something new now that April is here. I can't imagine the daily turmoil. This Sunday is Easter, our great day of hope. I hope you will soon have good news. I don't have to say "keep the faith", for you do. We will also. God Bless You. Love from Larry and me. |
| Connie Clark |
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| Hi! Your story is so touching and it really hits home. My four year old daughter was found to have 4+ albumin in her urine on a routine headstart physical. They too thought it was Minimal Change Syndrome. She was treated with high doses of prednisone, which did not work. In the meantime she was hospitalized twice with low sodium and low pottasium. She was on high doses of diuretics also. They finally did a biopsy on Sept. 25, 2003 where they diagnosised FSGS. They were hopeful that starting cyclosporine would help. In the meantime besides the massive swelling and fatigue she developed a massive amount of fluid around her heart. The echo tech told us it was "world record". Just what you want to hear. She was in the PICU for six days and she had a chest tube for four. Very scarey. Currently none of the medications have made a change in her blood work, but she is at least active. For two months of her life she would not wake up for more than two hours in a day. Also Amanda's pictures look so much like my Jenna's. The typical swelling. Amanda looks like an amazing girl with lots of courage. We know the toll it takes on the family. Good Luck with everything and I know I will checking your site often for updates. I will pray for you all often. God Bless!! |
| Jill Johnsrud |
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| You are in our prayers as you fight this battle,Amanda And thanks to Tracy for her beautiful note of thanks.
Love |
| Joanne and Al Meillon |
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| Hello Amanda & Tracy
This is Bob & Dru Service's Daughter Sandie, I am writing to you from Germany i just recieved a message from my father about you Amanda and I want you to know I am thinking of you and praying for you. And i am still counting on meeting you when I come to Nevada. Ok so stay strong and brave as i know you all are. You are all ways in my prayers.
Love always
Sandie |
| Sandie Curran |
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| Hi Tracy, I am Leoda Hall from church and I want you to know my prayers are with you. I know from experience how hard it is to see a loved one so sick, especially your child. There are so many things we don't understand, but we always remember, which I did forget for a time, that God is in control. I am studying a book called "Mystery of God's will" by Chuch Swindoll and it has helped me. Even tho we don't know you very well, we love and support you. God bless you and bring you and Amanda home soon. |
| Leoda Hall |
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| Tracey & Amanda ... Just wanted to send a note today to remind you how much we love you both, miss you terribly and pray for you each day. It is so hard to go thru these times away from your family and friends but we are all there in our thoughts and prayers. Always remember that Jesus loves you and is right there with you every moment of every day. We appreciate the updates on your website ... and thru your family. You're 2 of our favorite people!!!! God bless and keep you and fill you with His joy, hope and peace ... Love, Debbie & Pastor Dan |
| Debbie & Pastor Dan Eddington |
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| Amanda,
We are praying for you at Church 242 in Discovery Bay, CA. May God bless you and encourage you as well as heal you. Ralph |
| Ralph Rechnitz |
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| Dear Amanda and Tracey, Hello, Neighbbors. I hope that you and your friends at the Ronald McDonald House are doing well today. I looked at the photos of you and I especially liked the one of Amanda on the big motorcycle! I LOVED the doll house in the photo. Remember that wonderful log cabin doll house that Larry had? That was so nice. Alisha loves to play with her doll house, too. We like to keep our eyes open for little things that we put in it to play with. We think and pray for you everyday, Amanda and Tracey. Is there anything that we can do to help? Love, Gail Struble and Will and Alisha and Julie and Mark |
| Gail Struble |
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| I love you Amanda and pray for your recovery every day |
| Aunt Gay |
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| DearAmanda,
We hope you get better. We feel really bad for you. We're sorry that you got your kidneys out again. Well, bye for now. Hope we get to write again!!!!! |
| Elizabeth and Leah 5th grade |
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| Hi,
This is Krystine. I hope you feel better. and I am going to vist you in March. Every morring our class is praying for you. I hope you feal better soon really soon. |
| Krystine Redmond |
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| We hope that everything goes well for your whole family.We pray for you everyday and everynight and you are in our hearts! |
| Kendra Reynolds & Casey Kirpatrick |
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| We are in Krystine Redmond's class. We hope you feel better soon. We hope that next time you can get some kidneys, it works. All of our class is praying for you. |
| Andrew and Brennan |
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| Hello, I just came to see you with my mom, Jean. I'm so happy to see that Amanda is up and walking. That makes us feel so wonderful and encouraged that see is going to be fine. I send all my prayers and support to you all. Please always know that we are here for you, if you need anything, anything at all; please contact my mother. You have her number so I will just hope you remember that. Good luck and I wish you all and my very best! |
| Ashley Boyd |
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| Amanda, we are praying for your recovery & for your Mom & her wonderful support to you. We love ya'll & miss you. When you come home we're going motorcyling when the weather is warmer. We love you. Ted & Julie Batchelder |
| Ted & Julie Batchelder |
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| Amanda,
We are friend's of Dan & Debbie Eddington. They asked us awhile back to pray for you. You & your family has been in our prayers ever since! We've been beseeching the Lord to restore your health, Precious One. |
| Eb & Sherry Knuth |
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| Amanda: You and your mother are in my prayers daily. I am looking forward to seeing you back in church. |
| Paul Simpson |
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| Hi Amanda I saw your story in the paper and would like to send your parents some information about glyconutritionals. Please ask someone to go to glycostory.com and miraclesugars.com, then glycoscience.com and do some research, then e-mail me for information, no obligation in any way. My mission is to share the gift of glyconutritionals with everyone. Every body needs them and it is scientifically proven that for every disease there is one or more of the biological sugars missing, therefore the body does not have cell-to-cell communication and the immune system does not work properly. If you are computer literate you can do this research yurself. I will pray for you and hope sincerely to hear from you. God Bless all of you.
In Good Health, Dotty Lewis |
| Dotty Lewis |
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| You are doing an awesome job on this web site!! I am Debi Redmond, the mother of Krystine Redmond in Carson City. My daughter has nephrotic syndrome also, but is responding to new med for now. I met Tracey through Lucile Packard. Keep up the good work and I will continue to do what I can at this end to help. I have received a lot of response from Carson City and Reno from the newspaper article. There are more checks being mailed to ST. Teresa School and we will take care of deopositing them into the trust.
Debi |
| Debi Redmond |
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| WE ARE PRAYING FOR YOU |
| Alexander Family |
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| I have copied and pasted a letter which was sent to Washington Mutual with a check. Amanda is in our prayers.
Sunday, February 22, 2004
Washington Mutual
For The Benefit of Amanda Stewart
Acct Number: 489-071992-0
16861 Bernardo Center Drive
San Diego CA 92128
Dear Washington Mutual:
Please deposit the funds enclosed to the account benefiting Amanda Stewart.
This $600.00 was raised by ‘passing the hat’ at a Masonic Lodge function here at Wadsworth Lodge #25, F. & A.M. on Saturday February 21st, here in Sparks Nevada.
Amanda is in the thoughts and prayers of many Masons here in Northern Nevada.
With every best wish I remain
Sincerely,
(seal)
C.S. ‘Kip’ Rodecker, P.M.
Secretary
Encl: ck #1050 ($600.00)
CC: W.M. John E. Watson
e-file
CSR/wp
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| Wadsworth Lodge #25 F&AM, Sparks NV |
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| Dear Amanda, My mom read me the story about you in the newspaper yesterday.
I am sorry that you are sick. My mom and Dad are going to send some money. I hope that you get well soon. Your friend, Kara. |
| Kara |
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| Amanda and Tracey--I hope by the time you read this on Saturday, sweet Amanda is free of pain and reszting quietly with her mommy and nana. This is Jean Ann from Carson City and Ashley and I are coming for treatment this weekend and will be at the hospital on Monday and Tuesday. Our deepest prayers and love are sent in this message. Jean Ann Berkich and daughter Ashley Boyd, twin sister Briana Boyd. |
| Jean Ann Berkich and the Boyd twins |
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| Dearest Amanda,
I was just reading your article in the reno gazette journal, and i wanted to send a quick note to let you know you are in my prayers, and may god be with you and your family. hang in there kid!! |
| Tricia Guisasola |
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| Dear Amanda, you are such a brave and strong little girl. My mother had a kidney transplant, my sister the donor. I can relate so well to what you are going thru. Stay strong and brave and may God bless you and your family. |
| Kelly Heinrich, Las Vegas, NV |
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| Amenda, I will remember you in my prayers. May God Bless you |
| Maritha |
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| Amanda, I wish you all of gods blessing and you are in our thougths and prayers. My brotherinlaw just got a new kidney Tues Feb 18 from his wife. Right now we have a lot to pray for and Amanda you will be at the top of our list. |
| pam |
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| Hey Amanda,
I just wanted to remind you that God Loves You!! |
| Holly |
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| Hello! My name is Kendall. My friend Hilary had a kidney transplant this June because her disease was incurable. I hope you have a great life and remember that people are trying to help you. I am praying for you and i hope that you don't have anymore seizures. |
| Kendall |
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| My name is Hilary.I am 14 years old. I had a rare fatal disease called wegenner's granulumatosis. It is a rapid progressive form of vasculitis that attacked my kidneys and lungs. I was end-stage also and on top of it, had a collapsed lung from the disease. I had my transplant on June 11, 2003. I had to have an emergency transplant because my disease was incurable and I was near-death. Hope you do good with everything. And remember, though you see 1 person who is doing better than you, there is always atleast 10 who are worse off. |
| Hilary |
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| Our ladies Bible study has been keeping you and your family in our prayers. We rejoiced when we heard of your new kidney. However, we are deeply saddened and in much prayer over the latest news. God bless and keep you in His arms as He continues to take you through this very challenging time.
First Christian Church, Fountain Valley, California |
| Glenda Jansson |
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| Our prayers and thoughts are with you. Our Sunday School class spent almost the entire time praying for Amanda and your family. The many prayers offered were beautiful and inspiring. The Holy Spirit was truly there. |
| Karen Christianson |
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| DEAR AMANDA & FAMILY, MY NAME IS MUSTANG SALLIE AND I LIVE HERE IN CARSON CITY AS WELL AS SO MANY OF YOUR FRIENDS. YOU ARE BLESSED BY MANY PEOPLE WHO LOVE AND CARE ABOUT YOU AND YOUR STORY. MYSELF AND A GROUP OF FRIENDS WOULD LIKE TO MAKE CONTACT WITH KRYSTINE REMOND WHO IS ORGANIZING YOUR PENNY DRIVE. WE WOULD LIKE TO TRY AND HELP HER MAKE A DIFFERENCE WITH HER GOAL OF PENNY'S. WOULD YOU KINDLY GIVE HER MY E-MAIL ADDRESS SO WE CAN MAKE CONTACT. YOU HAVE NOT HEARD THE LAST FROM ME, AND I HOPE THINGS ARE GETTING BETTER FOR YOU AND YOUR FAMILY. MANY OF US WERE VERY TOUCHED BY YOUR FRIENDS DESIRE TO HELP. GOD BLESS YOU AND I HOPE TO HEAR FROM YOU AND KRYSTINE VERY SOON. MUCH LOVE, MUSTANG ALLIE AND FAMILY AND MANY CONCERNED FRIENDS. |
| MUSTANG SALLIE |
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| Tracy, we are still checking daily for good news about Amanda's surgery. Hope to see a happy posting soon. God bless you. |
| Connie |
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| Hi Amanda, You don't know me but I read your story in the Nevada Appeal on Sunday 2-8-2004 and I decided to write to you. I also have kidney problems and underwent a kidney transplant almost 10 years ago. I don't have the same disease. I have cysts in my kidneys so now I have 3 instead of 2. I am sending a check to try and help with the expences that you have incurred. You have a great amount of friends and family who all love you. God will be there when you need him as he was there for me. Keep your faith and my prayers are with you and your brother and sister and your Mom. If your Mom ever needs anything I live in Carson City and would love to help out any way I can. |
| Lenora (Chriss) Bates |
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| Dear Amanda, HOPE YOU FEEL BETER WE ARE PRAYING FOR YOU. YOU'LL ALWAYS BE IN ARE THOUGHTS. GOD IS WATCHING OVER YOU. GOOD LUCK TODAY! WE REALLY HOPE THE SERGERY GOES WELL! IT WILL BE BAD IF YOU AREN'T BETTER SOON! WE'LL ALWAYS REMEMBER YOU. |
| 4TH GRADE CLASS |
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| Heyyou. By the time you read this you will have had your surgery. I hope you are feeling fine and are getting stronger. I work just up King Street from your school, at the Attorney General's Office. Give me a call, stop by, and I will give you a tour of the building! Jim Spencer, 684-1200. |
| Jim Spencer |
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| Hi Amanda,
Our whole church bound together in prayer for you this morning for your surgery Monday. We will all be praying for you tomorrow that everything goes well and you have a speedy recovery. We will also be praying for your Mom, sister, brother and grandparents.
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| We are praying for you and will be thinking of you and your family, We miss you and want to see at church soon. Love the Baldwin's |
| Hannah |
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| HEY AMANDA,THIS IS MRS.SKREKAL'S 4'TH GRADE CLASS IN CAPITAL CHRISTIAN SCHOOL.WE HOPE YOU FEEL BETTER,AND WE REALLY HOPE THAT YOUR KIDNEY TRANSPLANT GOES WELL TOO.YOU WILL ALWAYS BE IN OUR THOUGHTS AND PRAYERS!
WITH LOVE,
MRS.STREKAL'S 4'TH GRADE CLASS |
| MRS.STREKAL'S 4'TH GRADE CLASS |
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| God bless you Amanda. Our family and our church family are faithfully praying for you.
Love,
The Eyraud's |
| The Eyraud's |
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| Hello Amanda and mom. I met your mama in the cafeteria the last time I was at Stanford treating my twin daughter, Ashley, for her condition known as Wegeners. We too live in Carson City. My continued prayers for you and your family and for God to work the same miracle on you that I'm begging him to do for my Ashley. Our best for a Healthy New Year |
| Jean Ann Berkich |
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| I LOVE YOU AND HOPE YOU FEEL BETTER |
| amanda haynes |
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| Tracey & Amanda ... we love you both and pray for you often. We miss you here in Carson City but know GOd is there watching over you. Remember that He loves you very much esp. on those days that seem the most difficult. We are praying for your surgery to be SOON so you can be on your way to feeling better and coming home. Sending you warm wishes, lots of happy hugs and joy to fill your hearts! |
| Love, Debbie & Pastor Dan Eddington |
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| Hello Amanda, I am Mr. Larry's sister-in-law. Larry is staying at my house now and talks about you and your family a lot. I know that Larry and Connie both miss you and your family. I hope that you can soon have your surgery and be well enough to go home and enjoy yourself again. My prayers are with you and your family. Take care and have a nicce holiday. |
| Bonnie Clark |
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| Hello, I am from Carson City, Nevada! My name is Ashley Boyd, my momther is here with me right now at the Stanford Packard Children's Hospital, and came apon your website! I'm a 15 yr old girl who is receiving Chemo for a disease called Wegeners Granulomatouis!! I am a Freshman at Carson High School.
My mom has just met your mom in the cafeteria and we also live in Carson City, Nevada!
Get feeling better soon!! You will have full recoverey anytime soon! I like your web-site! |
| Ashley Boyd & Jean Berkich (MOM) |
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| Darling Girl, We miss you and hope you can enjoy this season. You know God loves you and all of us who know you love you. |
| Larry and Connie |
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| HELLO THERE LADIES, WE ARE THINKING OF YOU OFTEN AND WANT YOU TO KNOW THAT WE MISS YOU ALL, AND YOU ARE IN OUR PREYERS LOTS OF HUGS AND KISSES |
| PAM ,GEORGE, AND KELCEE AND THE HERD |
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| We hope you are feeling better. All your friends at Sutro are praying for you. I am now attending school in Virginia City. Hope to hear from you. |
| Krystal Byars |
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| I hope you feel better. |
| krystal byars |
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| So sorry about the delay. We tried to call but left our phone book in SC. Back in NC this week. We think of her daily, pray for all of you daily and hope to hear good news by Christmas or before. Hugs from both of us. |
| Larry and Connie |
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| Hey Amanda, just wanted to let you know that we are thinking of you and are counting down the days until your surgery. One of these days, I'll have to bring my boys up to meet the bravest young lady in the world. Your mom and I went to college together and I'm sure your grandpa will tell you some stories of the 'lopsided ponytail girl' that will make you laugh. Keep the faith and know we are here with you. |
| Lisa Smith (Hall), Bailey and Hunter |
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| Hi Amanda,
My name is Doug. You don't know me but I'm old friends with your Mom and your Grandparents. I just wanted you to know I think you are a very precious and brave young lady. I also know that Jesus is very, very pleased and proud of you. Keep hold of your good attitude and high outlook on life because nothing is impossible for God when you believe in Him. I have a scripture for you:
For it was fitting for Him, for whom are all things, in bringing many sons to glory, to make the captain of their salvation perfect through sufferings.
For both He who sanctifies and those who are being sanctified are all of one, for which reason He is not ashamed to call them brethren, saying:
"I will declare your name to my brethren;
In the midst of the assembly I will sing praise to you."
Hebrews 2:10-12
Isn't that awesome! Jesus is going to sing to you Amanda. That's just one of many promises He has for you. I have a daughter about your age. I think you two would like each other, she too loves Jesus. My family and I and our church family are praying for you.
In Christ's love,
The Eyraud Family
Doug, Jeanie, Taylor, Cara, and Daniel |
| Doug Eyraud |
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| Amanda, I wish you all the best and my daughter and I will keep you in our thoughts and prayers. We wish you well! |
| Scott & Samantha Sawicki |
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| Amanda, You don't know me, you've heard about me. I'am your Great Aunt Betty Sue who lives in Tennessee. You see I have a grandson little Joseph he's five years old.He had a kidney transplant back in Aug. 2000, his kidney birthday will be soon. His father Berry Neal Ary gave him one of his kidneys and you know Amanda he is doing so good now. I will pray for you to have good luck like little Joseph I know the Lord can help you too. We'll be thinking of you and praying for you. Love Your Great Aunt Betty Sue Ary |
| Great Aunt Betty Sue Ary |
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| Hey Amanda. This is your cousins in Tennessee. Berry, Alicia, Heavenly, Joseph, and Kyle Ary. We are praying for you. Joseph is 5 yrs old. He has had his daddy's kidney almost 3 years now. He was born with small kidneys. He never had to do dialysis, we were blessed. He feels so much better since his transplant. It has opened a whole new world for him and us. We have seen things, and met people who have touched our lives. It is terrible that anyone has to suffer with an illness but especially when it is a child, but it is great to know that God is taking care of everything. You are a special little girl and you have touched so many people's hearts. We will continue to pray. Just hang in there when the days get rough. I know Joseph would like to talk to you. He likes to talk to people about his kidney. Email or call us anytime. Take Care and may God Bless You and your family. Just remember God is with you through all things ALWAYS!
Love Berry, Alicia, Heavenly, Joseph, and Kyle |
| The Arys |
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| hi amanda its me desmond how are you miss seen you and your mom around . im in england now moved here 1 month ago . you keep up that beautiful smile you got ok . tell your mom e mail me . love and god bless from deswmond |
| DESMOND |
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| Dear Amanda, This is Christin Pettibone, my Dad is the one who made the website. I am still praying for you and always will I hope you will keep your positive attitude and I hope I can talk on the phone with you some more. I am 11 but that does not matter we can still be good friends! talk to ya later! |
| Christin Pettibone |
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| hi amanda im jade desmonds grand daughter in england my grandad moved here to be with me my dad and family im 11 and i would like to become your penpal i enjoy spending time with my grandad and he is funny i also enjoy reading and sport activets my grandad to me about you amanda and i wish you the best from your penpal jade |
| jade lally |
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| Dear Amanda,I know that you have had a hard time adjusting. Please know and understand that God is always with you and that all of your family LOVES you. I know that things may be hard to understand, but you have proved that you are strong. I believe that you will be alright, and that the lord will help you through until you are fully healed and than he will be such a part of your life that you and he will never want to be apart. I am going to keep you in my prayers. Keep Your Chin UP!!! |
| Ben Antonucci |
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| Dear Amanda, I hope you are doing well and I remember you from the hospital. It was great to have a friend - someone that really understood. I am better now from my heart surgery. I will be praying for you. Trust in God for everything!
Sincerely,
Andrea Daily |
| Andrea Daily |
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| Hi Amand, this is Bob Service's daughter Sandie. My Dad tells me you are back home and back to church. I think that is great. How are you feeling? I sure hope I get to meet you some time. My husband and I are hoping to come out for a visit maybe in September. If you wnat to write back to me you can. We can be e-mail pals. How dose that sound? Ok well I have to go get ready for work now ok. You stay strong and hang in there. and I hope to hear from you :) |
| Sandie Curran |
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| amanda glad to hear you are home love you aunt margie |
| margie fox |
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| What a heart felt story. I am so sorry to hear about your plight. We also have a son who had kidney failure and who was deathly sick. With no reason or none cause. It was truly a year of hell watching him vomit everyday and the month that he was on hemodialysis, he experienced the same terrible headaches and vomitting. It was an awful time in our lives. Just watching his lifeless body laying on the couch was more than I could handle. After dealing with the kidney failure and paritoneal dialysis for over a year, my husband, his dad, gave him a kidney. He is a changed young man. What a blessing it is to see the life in him now. It has been a year ago last December the 10th that he got his transplant. He will be on medicines the rest of his life, but at least now he has a life. My prayers are with you and Amanda and the rest of the family. It is a very hard thing to go through, we couldn't have done it without the Lord. God bless you and comfort you in these trying days ahead. I pray Amanda will do good on her peritoneal dialysis. Spend a lot of time on your knees. Sincerely, Debbie Cauthorn, Sterling, Ks
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| Debbie Cauthorn |
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| I think that every time someone thinks that they are having a bad day all they have to do is look at your smile and the way your handling yourself,with class and dignety.I know I will think twice when I think I am having a rough day. Hang in there. your are and insperation thanks |
| mike cahill & children |
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| AMANDA HI THIS IS A HI FROM YOUR COUSIN LINDA IN SALT LAKE CITY AND AUNT MARGIE FOX FROM PARMA IDAHO we just wanted to send a hi
and and get well soon . you have the biggest smile WOW bet you got that from grandpa allen.
YOU TAKE CARE |
| LINDA CRIMIN MARGIE FOX |
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| Dear Amanda, May God's healing touch surround you and make you well and whole. You are in my daily prayers. |
| Rosalind |
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| Keep your chin up kiddo ~ You can make it!!! |
| Sonja Cupler |
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| You and your family will be in my prayers. I will pray for physical and mental strength for all those things that lie ahead for you. You are a beautiful young lady and I wish you nothing but good things. |
| Debbie Sikes |
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| Dear Amanda, My name is Sandie Curran My father is Bob Service he is a member of your church in Carson City. I used to live in Carson But I live in Florida now. I Love your web site, what a great job you have done. But more that a great job on the web site I think YOU are amazing. I have read your story and you have such strength. I will keep you in my prayers. And I would love to get an e-mail from you if you feel up to it ok. |
| Sandie Curran |
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| Dear Amanda, I am a co-worker of Donna Klinglesmith and heard of your story through her. I am going to be praying for you!! You are a very special little girl who is amazingly brave. You are an inspiration... Please keep a positive attitude and remain strong. Love,
Leigh |
| Leigh Koenig |
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| Hi Amanda. How are you? My name is Tia, I'm your cousin Rachel's Friend and your Aunt Mary sent me an email about you. I Wanted you to know that I think you are a very brave girl. I will pray for you and I will tell my chuch about you so that they can pray too. Ok, so what is your favorite ice cream, mine is chocolate chip cookie dough. Do you have a favorite cartoon, mine is Sponge Bob Square Pants. Write me back sometime ok. I'm gonna talk to my Dad and see if we can do something to help ok. You keep being brave and I will talk to you later ok. Love and prayers, Tia Easterday. |
| Tia Easterday |
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| Dear Amanda, You are a beautiful little lady. I will pray for you and try to figure out a way to help you and your family out. I am working on it. You just hand in there and think positive thoughts and say your prayers. I hope to meet with you soon. My daughter is your age. I bet you girls would get along great. You take care honey and I will be in touch soon. With love Jim, Falynn and Asa.
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| jim burnett and kids |
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| Dear Tracey and Amanda, We are praying for you. Thank you for being such a wonderful ray of sunshine to us , especially, Andrea, when she was in the hospital for her heart surgery. We really loved meeting you. You ladies and your family too, are amazing people, strong, and courageous people. God bless you and your family. Sincerely, Bob, Angela, Andrea and Brian Daily |
| bob, angela, andrea & brian daily |
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| Dear Amanda, I see that you now have a guest book added to your web site. I think it is great! Now we can read the thoughtful comments others have sent. We pray for you to get healthy again.
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| Riley Cole |
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| Dear Amanda, You are very brave and I admire your strength and courage in fighting this illness. I pray for you to be healthy again soon. Please accent my donation to Washington Mutual Bank. I hope this helpd you and your family.
Love,
Keeley Alina |
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